Children and young people with SEND have the same rights as non-disabled children and young people to participate in decisions and issues that affect them. The importance of the participation of children and young people with SEND is reflected in both the UN Convention on the Rights of the Child and in duties placed on the local authorities to support and involve children and young people in decision-making. Sadly, research suggests that despite this children and young people with SEND in practice remain inactive in decisions about their education and future.
Why gather the views of children and young people with SEND?
Research suggests that listening to the views of children and young people with SEND is beneficial for several reasons. There are clear advantages including increased motivation, independence, perception of personal control and progress. Todd (2003) found that if children and young people are part of decision-making processes they can provide appropriate information about their skills and abilities and offer their views about possible interventions; enhancing the likelihood of successful outcomes. The SEND Code of Practice makes it very clear that throughout the process of assessment the child/young person’s views should be sought. Every cycle is an opportunity to enable the children and young people to be involved in decision making. It is important to have regard to the views, wishes and feelings of the child/young person and for these views to be clearly incorporated into Assess-Plan-Do-Review Cycles. ‘Planning should start with the individual and local authorities must have regard to the views, wishes and feelings of the child, child’s parent/carer or young person, their aspirations, the outcomes they wish to seek and the support they need to achieve them.’ (SEND Code of Practice, 2015, pg. 147).
Throughout the assessment/planning process staff should:
Using a person-centred approach, involving child/young person and their families, is key.
A variety of methods can be used to gather children and young people’s views. Some children and young people will be happy to talk and complete questionnaires whereas others will need the practitioner to be more creative (e.g. children/young people with speech and language difficulties or children/young people with profound and multiple learning difficulties). All pupils should be encouraged to give a view, to gain a realistic view of how they perceive their setting/school experiences. This will then help highlight actions that will support adaptations to Ordinarily Available Provision and other more targeted interventions.
For children and young people who may not communicate verbally or prefer using visual supports try non-verbal methods e.g.
For children and young people who are able to communicate verbally, use verbal or written methods (adults could scribe / pupil could use speech to text / they could write their own views if they wish). For example (templates included in the Appendix):
Older children/young people can contribute to planning in well-structured meetings. Here are two ways of sharing views and representing planning of actions jointly with child/young person in a visual and inclusive way:
The importance of enabling children/young people to have a voice in decisions regarding their life and learning is central to SEND policy. Pupil participation should be encouraged in all decision-making processes including setting individual targets, support plans and contributing to assessments and reviews. Schools and settings need to promote a culture of ensuring pupil voice across a range of issues and children and young people need to be taught and supported to contribute appropriately and effectively. It’s up to the adults to ensure children and young people see the impact of their contribution, as many children and young people become frustrated when their voice appears to be ignored.
Annual Reviews can be an intimidating experience for some children and young people as they are sometimes asked to express their views in a room full of adults. It can be helpful to ensure that the child/young person’s views are gathered well in advance of the meeting, perhaps over several weeks. The child/young person may prefer to be supported by a key adult or trusted member of staff, in articulating their ideas. The child/young person may also wish to be supported by their key adult in the review meeting, for moral support. Alternatively, the child/young person may wish to prepare a video or PowerPoint to share their views, or to ask a trusted adult to share their views on their behalf without the need to attend the review meeting in person. It may be helpful following the Annual Review for the child/young person to talk through the meeting with a supportive adult to answer queries or highlight the actions of the review and the next steps.